Driving Quality in Informatics: Fulfilling the Promise

393 Pages·2015·5.501 MB·English

by  K.L Courtney, A Kuo, O Shabestari

DRIVING QUALITY IN INFORMATICS:
FULFILLING THE PROMISE
Studies in Health Technology and
Informatics
This book series was started in 1990 to promote research conducted under the auspices of the EC
programmes’ Advanced Informatics in Medicine (AIM) and Biomedical and Health Research
(BHR) bioengineering branch. A driving aspect of international health informatics is that
telecommunication technology, rehabilitative technology, intelligent home technology and many
other components are moving together and form one integrated world of information and
communication media. The series has been accepted by MEDLINE/PubMed, SciVerse Scopus,
EMCare, Book Citation Index – Science and Thomson Reuters’ Conference Proceedings Citation
Index.
Series Editors:
Dr. O. Bodenreider, Dr. J.P. Christensen, Prof. G. de Moor, Prof. A. Famili, Dr. U. Fors,
Prof. A. Hasman, Prof. E.J.S. Hovenga, Prof. L. Hunter, Dr. I. Iakovidis, Dr. Z. Kolitsi,
Mr. O. Le Dour, Dr. A. Lymberis, Prof. J. Mantas, Prof. M.A. Musen, Prof. P.F. Niederer,
Prof. A. Pedotti, Prof. O. Rienhoff, Prof. F.H. Roger France, Dr. N. Rossing,
Prof. N. Saranummi, Dr. E.R. Siegel, Prof. T. Solomonides and Dr. P. Wilson
Volume 208
Recently published in this series
Vol. 207. M. Graña, C. Toro, R.J. Howlett and L.C. Jain (Eds.), Innovation in Medicine and
Healthcare 2014
Vol. 206. A.J. Maeder, M. Mars and R.E. Scott (Eds.), Global Telehealth 2014
Vol. 205. C. Lovis, B. Séroussi, A. Hasman, L. Pape-Haugaard, O. Saka and S.K. Andersen
(Eds.), e-Health – For Continuity of Care: Proceedings of MIE2014
Vol. 204. H. Grain, F. Martin-Sanchez and L.K. Schaper (Eds.), Investing in E-Health: People,
Knowledge and Technology for a Healthy Future – Selected Papers from the 22nd
Australian National Health Informatics Conference (HIC 2014)
Vol. 203. G. Riva, P. Ajmone Marsan and C. Grassi (Eds.), Active Ageing and Healthy Living –
A Human Centered Approach in Research and Innovation as Source of Quality of Life
Vol. 202. J. Mantas, M.S. Househ and A. Hasman (Eds.), Integrating Information Technology
and Management for Quality of Care
Vol. 201. K. Saranto, C.A. Weaver and P. Chang (Eds.), Nursing Informatics 2014 – East Meets
West eSMART+ – Proceedings of the 12th International Congress on Nursing
Informatics, Taipei, Taiwan, June 21–25, 2014
Vol. 200. B. Blobel, S. Sauermann and A. Mense (Eds.), pHealth 2014 – Proceedings of the
11th International Conference on Wearable Micro and Nano Technologies for Per-
sonalized Health, 11–13 June 2014, Vienna, Austria

ISSN 0926-9630 (print)
ISSN 1879-8365 (online)
DDrivingg Quaality inn Informmaticss:
Fuulfillinng the Promiise

Edited byy
Karenn L. Couurtney
AAlex Kuoo
and
Omiid Shabeestari
School of HHealth Informmation Sciencce, Universityy of Victoria,,
Victoria, Brritish Columbia, Canadaa
Amstterdam • Berrlin • Tokyo •• Washington, DC
© 2015 The authors and IOS Press.
All rights reserved. No part of this book may be reproduced, stored in a retrieval system,
or transmitted, in any form or by any means, without prior written permission from the publisher.
ISBN 978-1-61499-487-9 (print)
ISBN 978-1-61499-488-6 (online)
Library of Congress Control Number: 2015930753
Publisher
IOS Press BV
Nieuwe Hemweg 6B
1013 BG Amsterdam
Netherlands
fax: [phone]
e-mail: [email protected]
Distributor in the USA and Canada
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e-mail: [email protected]
LEGAL NOTICE
The publisher is not responsible for the use which might be made of the following information.
PRINTED IN THE NETHERLANDS
Driving Quality in Informatics: Fulfilling the Promise v
K.L. Courtney et al. (Eds.)
IOS Press, 2015
© 2015 The authors and IOS Press. All rights reserved.
Preface
“If you build it, they will come.”

In the past, this seemed to be the dominant paradigm for technology development and
implementation in healthcare. This initial paradigm often led to poor user satisfaction
and failed implementations of healthcare information technology. In the last few dec-
ades, informatics has embraced user-centered design principles to improve both the
design and adoption of information and communication technologies. However, fre-
quently the end-user is perceived to only be the clinician.
Although the data in healthcare are about and are received from patients, patients
are not usually perceived of as end-users of health information or health information
technology. In the popular press, we are seeing a grass-roots effort from patients to
change their role in their own health management. A change to a more dynamic part-
nership with clinicians means we need tools that are able to support patients as well as
clinicians in this partnership. New online tools and mobile applications are sprouting
up to fill the demand, but rigorous evaluation of these tools can be lacking; leading to
questionable quality and concerns for patient safety. The informatics field has the ex-
pertise to provide critical leadership in this area.
The call for this year’s conference asked for authors to consider the role and voice
of the patient. Patients themselves were invited to contribute papers describing their
experiences in healthcare and their use of their own data. The papers here reflect not
only the informatics innovations in the field, but also explore how to include the pa-
tients when considering design, implementation and long-term adoption of health in-
formation systems.
We hope that the knowledge shared between ITCH 2015 participants will generate
further discussions and collaborations and lead to breakthroughs in delivering effective
and inclusive healthcare worldwide.
Karen Courtney
School of Health Information Science
University of Victoria
Victoria, British Columbia
Canada
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vii

ITCH 2015 Steering Committee
Conference Chair
Abdul Roudsari
Local Scientific Committee
Elizabeth Borycki, Karen Courtney, Alex Kuo and Andre Kushniruk
Editorial Committee
Karen Courtney, Alex Kuo and Omid Shabestari
Local Organizing Committee
Silvia Dulc, Emma Hannah, Shawna McNabb, and Jessica Worsley
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ix

ITCH 2015 Scientific Review Committee
Raza Abidi Simon Hall
Dalhousie University Ministry of Health
Halifax, NS, Canada Victoria, BC, Canada

Juan Adriano Michael Hayes
City University London University of Victoria
London, UK Victoria, BC, Canada

Helen Almond Marilynne Hebert
University of Tasmania University of Calgary
Calgary, AB, Canada
James Anderson
Purdue University Don Juzwishin
West Lafayette, IN, USA Alberta Health Services
Edmonton, AB, Canada
Joan Ash
Oregon Health & Science University Maged Kamel Boulos
Portland, OR, US University of Plymouth
Plymouth, UK
Riccardo Bellazzi
University of Pavia Craig Kuziemsky
Pavia, Italy University of Ottawa
Ottawa, ON, Canada
Joseph Cafazzo
University Health Network James McDaniel
Toronto, ON, Canada University of Victoria
Victoria, BC, Canada
James Cimino
National Institutes of Health Don Newsham
Bethesda, MD, US COACH
Toronto, ON, Canada
Eric Eisenstein
Duke Clinical Research Institute Christian Nøhr
Durham, NC, USA Aalborg University
Aalborg, Denmark
Kate Goddard
City University London Morgan Price
London, UK University of British Columbia
Vancouver, BC, Canada
Phil Gooch
City University London Stephen Rees
London, UK Aalborg University
Aalborg, Denmark