Appendix to Ethical Guidelines for the Delivery of Health Services by DHEW

430 Pages·2006·3.29 MB·English

APPENDlX TO
ETHICAL
GUIDELINES FOR
THE DELIVERY OF
HEALTH SERVICES
BY DHEW
THE NATIONAL
COMMlSSlON FOR
THE PROTECTION OF
HUMAN SUBJECTS
OF BIOMEDICAL AND
BEHAVIORAL RESEARCH
This Appendix contains the papers,
reports and other materials that were
reviewed by the Commission during its
deliberations of ethical guidelines for the
delivery of health services by DHEW.
U.S. Department of Health. Education. and Welfare
DHEW Publication No. (OS) 78-0011
For sale by the Superintendent of Documents, U.S. Government Printing 0ffice
Washington, D.C. 20402
Stock Number 017-040-00432-0

C O N T E N T S
I. PAPERS AND REPORTS PREPARED FOR THE COMMISSION
. Ethical Problems in the Delivery of Health
Services: A Report to the National Commission
for the Protection of Human Subjects of
Biomedical and Behavioral Research . . . . . . . . David Mechanic, Ph.D.
. On the Relevance of Ethical Principles and
Guidelines Developed for Research to
Health Services Conducted or Supported
by the Secretary, DHEW . . . . . . . . . . . . . . Robert J. Levine, M.D.
. Report to the Commission for the Protection
of Human Subjects of Biomedical and
Behavioral Research . . . . . . . . . . . . . . . . Philip R. Lee, M.D.
Carol Emmott, Ph.D.
Steven A. Schroeder, M.D.
. The Relevance of Ethical Principles and
Norms Developed for the Conduct of
Research to the Delivery of Health Services
Supported by the Secretary, DHEW . . . . . . . . . John Fletcher, Ph.D.
. Ethical Issues in Health Care . . . . . . . . . . . . Roy Branson, Ph.D.
II. PAPERS AND RECOMMENDATIONS FROM THE
NATIONAL MINORITY CONFERENCE
. Ethics in Human Experimentation in Health
Care Delivery . . . . . . . . . . . . . . . . . . . William A. Darity, Ph.D.
. American Indian Health Care Delivery Today . . . . . . Lionel H. deMontigny, M.D.
. Ethics and Human Experimentation: Effect
on Cultural Patterns and Social Values
of Spanish Surnamed Americans . . . . . . . . . . . Arturo E. Raya, Ph.D.
. Resolution and Recommendations of the
Workshop on Health Care Delivery . . . . . . . . . National Minority
Conference on Human
Experimentation,
January 8, 1976
C O N T E N T S (CONTINUED)
III. MATERIALS REVIEWED BY THE COMMISSION
10. American Hospital Association Statement on a Patient's
Bill of Rights
11. Health Services Administration - Administrative Guidelines
for Federally Funded Ambulatory Care Centers - Patient's
Bill of Rights
12. Patient's Bill of Rights - Phoenix Area, Indian Health Service
13. Skilled Nursing Facility Patient's Bill of Rights
Required as a Condition of Participation in
Medicare/Medicaid
14. DHEW Regulations for Project Grants for Operating
Community Health Centers
15. "Personal Privacy in an Information Society," Excerpts from
Report of the Privacy Protection Study Commission, July 1977.
A. The Citizen as a Beneficiary of Government Assistance
B. Patient Access to Medical Records
IV. MATERIALS PERTAINING TO STERILIZATION
16. DHEW Proposed Regulations Governing Sterilization
17. Comment of the Commission on Proposed Rulemaking
Governing Sterilizations Funded by DHEW
I
PAPERS AND REPORTS PREPARED FOR THE COMMISSION

1
ETHICAL PROBLEMS IN THE DELIVERY OF HEALTH SERVICES
David Mechanic, Ph.D.
May, 1977