Altruism Reconsidered: Exploring New Approaches to Property in Human Tissue

331 Pages·2009·3.34 MB·English

by  Michael Steinmann

Altruism reconsidered
medical law and ethics
Series Editor
sheila mclean, director of the institute of law and ethics in medicine,
school of law, university of Glasgow
the 21st century seems likely to witness some of the most major developments in
medicine and healthcare ever seen. At the same time, the debate about the extent
to which science and/or medicine should lead the moral agenda continues, as do
questions about the appropriate role for law.
this series brings together some of the best contemporary academic
commentators to tackle these dilemmas in a challenging, informed and inquiring
manner. the scope of the series is purposely wide, including contributions from a
variety of disciplines such as law, philosophy and social sciences.
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Altruism reconsidered
exploring new Approaches
to Property in Human tissue
Edited by
micHAel steinmAnn
Stevens Institute of Technology, USA
Peter sÝKorA
University of Saints Cyril and Methodius, Slovakia
urBAn WiesinG
Eberhard Karls Universität, Tübingen, Germany
© michael steinmann, Peter sýkora, and urban Wiesing 2009
All rights reserved. no part of this publication may be reproduced, stored in a retrieval
system or transmitted in any form or by any means, electronic, mechanical, photocopying,
recording or otherwise without the prior permission of the publisher.
michael steinmann, Peter sýkora, and urban Wiesing have asserted their right under the
Copyright, Designs and Patents Act, 1988, to be identified as the editors of this work.
Published by
Ashgate Publishing limited Ashgate Publishing company
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union road 101 cherry street
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British Library Cataloguing in Publication Data
Altruism reconsidered : exploring new approaches to
property in human tissue. -- (medical law and ethics)
1. Human body--law and legislation--europe.
i. series ii. steinmann, michael. iii. sýkora, Peter.
iV. Wiesing, urban.
344.4'04194-dc22
Library of Congress Cataloging-in-Publication Data
steinmann, michael, 1964-
Altruism reconsidered : exploring new approaches to property in human tissue / by
michael steinmann, Peter sýkora, and urban Wiesing.
p. cm. -- (medical law and ethics)
includes bibliographical references and index.
1. Preservation of organs, tissues, etc.--law and legislation. 2. Preservation of organs,
tissues, etc.--moral and ethical aspects. 3. right of property. 4. donation of organs,
tissues, etc.--law and legislation. 5. transplantation of organs, tissues, etc.--law and
legislation. 6. medicine--research. i. sýkora, Peter, 1956- ii. Wiesing, urban. iii. title.
K3611.t7.s74 2009
174.2'97954--dc22
2009015492
isBn 9780754672708 (hbk)
isBn 9780754689362 (ebk.V)
contents
List of Figures and Tables ix
List of Contributors xi
Acknowledgments xvii
1 introduction 1
Michael Steinmann
PART I RECIPRoCITy AND PARTICIPATIoN: ovERCoMINg THE
MoDELS of ‘gIfT’ AND ‘ALTRUISM’
2 Altruism in medical donations reconsidered: the reciprocity
Approach 13
Peter Sýkora
3 notes on Policy, language and Human tissue 51
Richard Tutton
PART II DoNATIoN IN THE LIgHT of HUMAN EMBoDIMENT
4 Why the Body Matters: the Symbolic Significance of Human Tissue 65
Alastair V. Campbell
5 duties towards our Bodies 71
Michael Steinmann
PART III ToWARDS A RICHER UNDERSTANDINg of PRoPERTy
IN ETHICS AND LAW
6 Property in Human tissue: triangulating the issue 93
Roger Brownsword
7 Property rights in the Body – A Philosophical Approach 105
Barbro Fröding
vi Altruism Reconsidered
8 Reflections on Entitlements in the Human Body from an equity
Perspective 113
Nils Hoppe
PART Iv MoDELS of govERNANCE: PITfALLS AND
PoSSIBILITIES
9 using tissue and material from the Human Body for Biomedical
research: Proposals for a normative model 133
Christian Lenk and Nils Hoppe
10 Preventing Conflicts of Interests in the Field of Human Biological
materials: the ‘contractual model’ as an Avant-garde 143
Christine Noiville
11 the model of trust 149
Caroline Mullen
12 moore’s law and the taxman: some theses on the regulation of
Property in Human tissue 161
Jasper A. Bovenberg
13 An investigation of the conception, management and regulation of
tangible and intangible Property in Human tissue: the
Propeur Project 169
Caroline Mullen and Heather Widdows
PART v THE PERSISTINg CHALLENgES of REgULATIoN
14 Personal rights over an individual’s Biological sample stored for
research 183
Aitziber Emaldi-Cirión
15 Human Biological materials among civil, trade and Health
Law: Ethical, Anthropological and Legal Implications of Conflicts
of law system 201
Catherine Labrusse-Riou
16 Indirect Commodification of Ova Donation for Assisted
reproduction and for Human cloning research: Proposals
for supranational regulation 209
Ingrid Schneider
Contents vii
17 Accessing Genetic information: Anomalies Arising from the regulation
of Genetic material and Genetic information in the uK 243
Alison Hall
18 Biobanks for research: the German national ethics council’s
opinion 281
Jochen Taupitz
19 european regulations on Human tissue and cells transplantation 297
Ján Koller
Index 309
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list of Figures and tables
figure
8.1 the layers model 121
Tables
16.1 egg donation – regulation in europe and international practice 211
16.2 typology of oocyte donation 214
16.3 ‘the race is on…’: research cloning (scnt) projects in 2006/2007 219